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PE2080: Implement the recommended screening guidelines for people with Li Fraumeni Syndrome

Petition Summary

Calling on the Scottish Parliament to urge the Scottish Government to implement screening for people with, or at risk of, Li Fraumeni Syndrome (TP53 mutation), in line with the guidelines recommended by the UK Cancer Genetics Group

Petitioner: Louise McKendrick

Status: Under consideration

Date published: 22 January 2024

Click here for the full petition


Citizen Participation and Public Petitions Committee Consideration

SPICe Briefing (186KB, pdf) posted 28 February 2024


Committee Meetings

15 May 2024: The Committee agreed to write to Cancer Research UK, the Scottish Government and NHS Scotland genetic laboratories in Aberdeen, Dundee, Edinburgh and Glasgow. 

Official Report of Meeting 15 May 2024


Written Submissions

PE2080/A: Scottish Government submission of 14 February 2024 (189KB, pdf) posted 15 February 2024

PE2080/B: Scottish Government written submission, 10 June 2024 (21KB, pdf) posted 10 June 2024

PE2080/C: Scottish Hereditary Cancer Genetics Group written submission, 13 June 2024 (60KB, pdf) posted 27 June 2024

PE2080/D: Cancer Research UK written submission, 19 June 2024 (60KB, pdf) posted 27 June 2024