This Cross-party group's purpose:
If you want to get in touch, you can contact Natalie Frankish
Address:
Email: [email protected]
MSPs, individuals and organisations who participate in and support this group.
Convener
Party: Scottish National Party
MSP for: Glasgow Maryhill and Springburn (Constituency)
Member
Party: Scottish Conservative and Unionist Party
MSP for: Lothian (Region)
Member
Party: Scottish Labour
MSP for: South Scotland (Region)
Genetic Alliance UK - secretary
Alternating Hemiplegia of Childhood UK (AHC UK)
Autoimflammatory UK
Behcet's UK
British Liver Trust
CHAMP 1
Children's Health Scotland
EDS UK
Haemophillia Scotland
HSP Support Group
MyAware
NLRP12
Office for Rare Conditions
PNH Scotland
PSP Association
Rare Disease Nurse Network
The Aarskog Foundation
The Smith-Magenis Syndrome (SMS) Foundation
Turner Syndrome Support Society