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Chamber and committees

Commending #MEAction Scotland

  • Submitted by: Ben Macpherson, Edinburgh Northern and Leith, Scottish National Party.
  • Date lodged: Friday, 01 November 2024
  • Motion reference: S6M-15163

That the Parliament commends the important work of #MEAction Scotland and its dedication to supporting and campaigning for health equality for people with myalgic encephalomyelitis (ME) across Scotland; understands that ME, otherwise known as chronic fatigue syndrome (CFS), is a profoundly debilitating, complex, energy-limiting disease, affecting multiple systems within the body, and currently affects around 58,000 people in Scotland, with increasing numbers of those with long COVID meeting the diagnosis for ME; believes that #MEAction Scotland is doing essential work, including raising awareness of the connection with long COVID and promoting the findings of the Prevention of Future Deaths Report published in England in October 2024, which was carried out after the death of 27-year-old Maeve Boothby O’Neill, who had severe ME, and expresses gratitude to, and admiration for, the staff and volunteers at #MEAction Scotland for campaigning to help make sure that those with ME in Scotland have access to the appropriate care, support and specialist treatment now and in the future.


Supported by: Clare Adamson, Jackie Baillie, Jeremy Balfour, Neil Bibby, Sarah Boyack, Maggie Chapman, Foysol Choudhury, Tim Eagle, Murdo Fraser, Maurice Golden, Pam Gosal, Emma Harper, Stephen Kerr, Bill Kidd, Monica Lennon, Fulton MacGregor, Gillian Mackay, Rona Mackay, John Mason, Marie McNair, Audrey Nicoll, Alex Rowley, Kevin Stewart, Paul Sweeney, Michelle Thomson, Sue Webber, Brian Whittle, Beatrice Wishart