Chamber and committees

The Scottish Government is committed to ensuring that all people living in Scotland with dystonia are able to access the best possible care and support, and benefit from healthcare services that are safe, effective and put people at the centre of their care.

While the Scottish Government’s role is to set the strategic policy for the NHS in Scotland, NHS Boards and healthcare professionals locally have responsibility for both service delivery and people’s care. NHS Boards are expected to ensure that patients, including those who require care and support for dystonia, have access to a range of professionals to provide the appropriate management of their condition.

Dystonia UK, a leading charity that provides supports for people living with dystonia, is a member of the Neurological Alliance of Scotland (NAoS). The NAoS are key members of our National Advisory Committee for Neurological Conditions which is working to drive improvement in outcomes for people with a range of neurological conditions, including dystonia.

In 2019, we published a Neurological Care and Support – National Framework for Action, with a vision to ensure everyone with a neurological condition, including dystonia, can access the care and support they need to live well, on their own terms.

We are investing £4.5 million of funding to implement the 17 commitments in the framework, supporting innovative practice in neurological care for people with conditions such as dystonia. No applications have been received to date for projects in relation to the direct support and care of people affected by dystonia and we would welcome future applications.

Through Commitment 13 of the Framework, the Scottish Government will support neurological research by promoting the work of the Chief Scientist Office, third sector organisations’ research and Scottish neurological research networks; encouraging opportunities for people with neurological conditions to become involved in research trials; and highlighting the need for further qualitative research on the impact of living with a neurological condition.

The Chief Scientist Office research funding committees are open and applications on the underlying causes, diagnosis, treatment and management of dystonia are welcomed - Response Mode Funding Schemes – Chief Scientist Office (scot.nhs.uk)

As stated in the answer to question S6W-04876 on 20 December 2021 we have committed to establishing an independent taskforce to consider investigatory powers of the Scottish SPCA. The taskforce’s remit will cover the Scottish SCPA’s role in investigating wildlife crime and will involve engaging with the Scottish SPCA, alongside other relevant stakeholders, as it conducts its review.

Furthermore, the Scottish Government has regular discussions with stakeholders, including the Scottish SPCA at both official and Ministerial level. We will continue to work closely with stakeholders as work on the taskforce develops.

All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers

Throughout Storms Arwen and Barra the Scottish Government’s Resilience Division maintained daily contact with the power companies and close engagement continues.

It must be noted that resilience of the electricity networks is reserved and is the responsibility of the UK Government. The Scottish Government will be engaging with both the upcoming Ofgem and UK Government Storm Arwen reviews.

In addition, the Deputy First Minister requested that the Scottish Government’s Resilience Division begin work on the scope and terms of a review into the Storm Arwen response on 30 November 2021, and on 14 December 2021 he formally commissioned the Scottish Resilience Partnership to collate evidence from local resilience partnerships to inform the findings of the review.

The Scottish Government will also gather evidence from other relevant groups, for example the voluntary sector and utilities companies, including power companies.

‎This work is already well underway and we aim to publish a review paper with recommendations in mid-January.

Information on cataract procedures is set out in the acute hospital publication available through the link below. However, this does not cover the full time period requested as the latest publication shows procedures during the 2020-21 financial year. Information on the other conditions you have asked about is not held centrally.

https://publichealthscotland.scot/media/9294/table-7-procedures.xlsx

The link below leads to the latest elective waiting times publication which was published on Tuesday 30 November for the quarter ending 30 Sep 2021. This provides number of patients waiting and seen by specialty for outpatients and inpatient / day cases.

Stage of treatment waiting times - Inpatients, day cases and new outpatients 30 November 2021 - NHS waiting times - stage of treatment - Publications - Public Health Scotland

The split between inpatient and day case is not published. in addition, this publication only covers details up to the end of September 2021, with the information on the quarter ending 31 December 2021 due to be published at the end of February.

NHS Scotland will consider fertility preservation and gamete storage for patients who have been assessed and referred by the Gender Identity Service as suitable for gender reassignment.

Our Rail Decarbonisation Action Plan requires a rolling programme of electrification to meet its target date of 2035. We continue to make good progress, including the current electrification work on the Barrhead and East Kilbride routes. Early development work for further routes is currently underway as part of our project pipeline approach and we will make further announcements on these at an appropriate stage of development.

Scottish Government officials are continually engaging with NHS Boards to identify particular areas of concern. This includes the gathering of daily capacity and weekly absence reporting from all territorial Health Boards.

Through this ongoing engagement, NHS Highland advise that they have embedded an established structure for daily clinical and care huddles which are designed using the principles of the Scottish Patient Safety Programme. These forums are used for reviewing staffing and escalating any concerns in relation to patient safety and quality and staff wellbeing.

We are fully aware of the unprecedented pressure that the pandemic is putting on services within NHS Highland and across Scotland. That is why we have announced a record £300 million of investment to support Health Boards and their staff over the coming months.

As part of this investment, NHS Highland is receiving additional in-year and recurring finance to support international recruitment of registered nurses and additional Healthcare Support Workers for acute services. The Board has also received a share of in-year investment to provide additional support to its recruitment team and to recruit an international recruitment lead.

As of 06 December 2021, 54.8% of people in Scotland have registered a donation decision on the NHS Organ Donor Register.

Our reducing risks in schools guidance sets out the current COVID-19 mitigations in schools.

Current guidance reflects the best scientific and clinical advice, as well as the current state of the pandemic and the anticipated trajectory of infections. The restrictions, which limit non-essential visitors in schools and early learning and childcare settings, include attendance by parents for nativity plays and similar events. However, we know that many schools and settings plan to use other creative means to present these activities, such as streaming them online or holding them outdoors.