To ask the Scottish Government how many patients have died while on an NHS Scotland waiting list in each year since 1999.
Public Health Scotland (PHS) is unable to provide information on how many patients have died while on an NHS Scotland waiting list in each year as far back as 1999. However, the national waiting times datamart captures quality-assured data on the reasons for a patient being removed from a waiting list, including when a patient has died, from 1st April 2013 onwards.
Table 1 contains the following trend information for the period 1 st April 2013 to 31 March 2022, presented by financial year:
? The number of patients waiting to be seen at a new outpatient appointment or waiting to be admitted for treatment as an inpatient or day case, expressed as an average based on the number waiting at the end of quarters in each financial year.
? The number of removals from waiting lists for the reason ‘died’.
? A simple mortality rate is also included to account for variation in waiting list sizes. This is presented as the number of deaths per year per 1000 patients waiting at quarter-end, averaged over the quarters provided for each year.
Table 1: Average waiting list size and total number of patients removed from lists for the reason ‘died’ whilst waiting for a new outpatient appointment or treatment as an inpatient or day case, NHSScotland, April 2013 to March 2022
| Inpatient or Day case | New Outpatient |
Year | Number on List | Died | Rate | Number on List | Died | Rate |
2013-2014 | 54,063 | 736 | 13.6 | 238,212 | 3,534 | 14.8 |
2014-2015 | 55,264 | 687 | 12.4 | 255,542 | 3,430 | 13.4 |
2015-2016 | 57,560 | 812 | 14.1 | 273,262 | 4,155 | 15.2 |
2016-2017 | 61,335 | 908 | 14.8 | 300,699 | 4,937 | 16.4 |
2017-2018 | 68,068 | 917 1 | 13.5 | 318,732 | 4,924 1 | 15.4 |
2018-2019 | 75,059 | 930 1 | 12.4 | 317,976 | 5,139 1 | 16.2 |
2019-2020 | 77,808 | 1,006 | 12.9 | 294,276 | 4,729 | 16.1 |
2020-2021 | 87,454 | 1,444 | 16.5 | 316,724 | 5,627 | 17.8 |
2021-2022 | 113,435 | 1,485 | 13.1 | 411,436 | 7,190 | 17.5 |
Source: PHS Waiting Times Datamart
Notes:
1 NHS Tayside figures for the number on list from 1 April 2017 to 30 June 2018 for patients waiting to be admitted for treatment as an inpatient or day case are sourced from local aggregate returns rather than the national waiting times datamart. The same applies for new outpatients for the period quarter 1 April 2017 to 31 December 2018. The number removed for reason 'died' is unavailable for these periods and there is therefore a small undercount of the total number reported under ‘died’ .
When interpreting analysis on the number of patients reported as having died while on a waiting list, PHS advise that there are multiple factors to take into consideration:
Firstly, the data are generated by the using ‘reason for removal’ - a categorisation in national data that records the reason for a patient being removed from a waiting list. For most patients this category provides an indication that a patient has been seen. For other patients it is used to record other reasons for being removed from a waiting list when treatment is no longer required or appropriate. In the latter instance there can be variation in the quality of the precise reason for a patient being removed from a list.
Secondly, national data does not allow the identification of deaths where the cause of death can be directly attributed to a delay in the appointment or treatment that the patient is waiting for.
Lastly the impact of the COVID-19 pandemic should also be considered both in respect of the impact it has had on mortality levels in the overall population during particular periods and on the impact it has had on planned care services, including increasing the number of patients waiting to be seen.