Chamber and committees

Four Cystic Fibrosis drug trials are currently ongoing in Scotland. Two are in NHS Lothian and two in NHS Greater Glasgow & Clyde.

In addition to the drug trials, NHS Research Scotland also supports

a basic science study involving patients at NHS Lothian

two clinical trials studying an intervention, one ongoing in NHS GGC one at NHS Lothian/NHS Fife

a Research Database ongoing at NHS Tayside, NHS Greater Glasgow and Clyde, NHS Forth Valley, NHS Grampian, NHS Lothian, NHS Lanarkshire, NHS Highland and NHS Ayrshire and Arran

A questionnaire study ongoing at NHS Grampian and NHS Lothian.

The median life expectancy for someone living with Cystic Fibrosis in Scotland is 47 years.

Data on life expectancy in Scotland and the UK is publicly available online from the UK Cystic Fibrosis Registry which can be viewed on the following link: https://www.cysticfibrosis.org.uk/the-work-we-do/uk-cf-registry

The previous Cabinet Secretary for Health and Sport discussed with Greater Glasgow and Clyde on several occasions the delivery of out of hours services.

The former Cabinet Secretary for Health and Sport did not hold discussions with NHS boards about Orkambi. This reflects the policy of the Scottish Government, which is that decisions about the availability of medicines on the NHS are taken independently of Ministers.

The 2017-18 NHS National Services Scotland (NSS) annual report refers to paediatric patients under 16 years.

In Scotland the transition age from paediatric to adult care centres varies between‎ 15 and 19 years within the 3 specialist centres. Therefore patients between 16 and 19 can be included in either band range depending on the centre.

The total numbers across Scotland are:-

a) 357 paediatric patients, and

b) 585 adult patients

Scottish Ministers have a general power to intervene in the determination of any planning application, but exercise that power very sparingly, only where it appears there may be some matter of genuine national interest at stake. A total of 29 applications have been called in since the start of 2013, an average of just over 5 applications per year.

Planning authorities are required to notify Scottish Ministers if they are minded to grant planning permission in respect of certain categories of development or as may otherwise be directed to do so. This allows Ministers an opportunity to consider whether particular applications should be called in for their determination. Planning Circular 3/2009 Notification of Planning Applications http://www.scotland.gov.uk/Publications/2009/03/27112705/ explains the Government’s role in this process, including categories of applications which must be notified.

I refer the member to my answer to the question S5W-17493 on ‎19 July 2018. All answers to written parliamentary questions are available on the Parliament’s website, the search facility for which can be found at http://www.parliament.scot/parliamentarybusiness/28877.aspx .

As laid out in its Business Plan, Scottish Enterprise works in partnership with other bodies to promote the full extent of Scotland's assets. The disposal of Scottish Enterprise assets is an operational matter for Scottish Enterprise.

Derek Mackay : I refer the member to my answer to the question S5W-17493 on‎ 19 July 2018. All answers to written parliamentary questions are available on the Parliament’s website, the search facility for which can be found at http://www.parliament.scot/parliamentarybusiness/28877.aspx .

I refer the member to my answer to the question S5W-17493 on 19 July 2018.

All answers to written parliamentary questions are available on the Parliament’s website, the search facility for which can be found at http://www.parliament.scot/parliamentarybusiness/28877.aspx .