Questions and answers

Parliamentary questions can be asked by any MSP to the Scottish Government or the Scottish Parliamentary Corporate Body. The questions provide a means for MSPs to get factual and statistical information.

Written questions must be answered within 10 working days (20 working days during recess)

Other questions such as Topical, Portfolio, General and First Minister's Question Times are taken in the Chamber

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Question reference: S6W-31163

Asked by: Beatrice Wishart, MSP for Shetland Islands, Scottish Liberal Democrats
Date lodged: Monday, 11 November 2024
Current Status: Answered by Jenni Minto on 26 November 2024

To ask the Scottish Government whether it will provide an update on the status of its work on the Scottish Good Practice Statement on ME-CFS, in light of the updated statement published in February 2023 stating that “This represents a first step in updating the Scottish Good Practice Statement", and that "Further work will be undertaken to more comprehensively review the guidance”.

We continue to explore how best to bring together cross-sector ME/CFS stakeholders, to ensure effective collaboration and engagement from all parties is considered in driving forward developments and recommendations regarding ME/CFS in Scotland.

The Health and Social Care Standards set out the expectation that care should be provided by health and social care professionals based on the most relevant evidence, guidance and best practice, as is appropriate to their profession and patient group. In July 2022 we wrote to health boards and GPs to raise awareness of the NICE guidelines and highlight key changes in practice, and these remain the most current national guidelines on the management of ME/CFS.

We are considering the potential to seek further clarity around the status and continued applicability of the Scottish Good Practice Statement on ME/CFS and its relationship to the existing NICE guideline.

In terms of our wider strategic work, a joined-up policy approach to long-term conditions is now being explored as the outcomes we seek are broadly the same regardless of condition including early identification and prevention, effective, safe and person-centred care and improved service delivery.

We are currently engaging with clinicians, patients, those who care for them and the third sector organisations who provide services to find out what matters to them. From this we will then have a full public consultation commencing in January 2025, following which a strategy will be developed and published later in 2025.

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Question reference: S6W-31163

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